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MGUS and Myasthenia Gravis - does anyone have both?
Blood Cancers & Disorders | Last Active: Jun 8 4:51am | Replies (7)Comment receiving replies
My experience.
To begin, I'm a 79 year old male, with MGUS diagnosed (incidentally) in 2016 after a lower back injury. Annual reviews confirm MGUS is stable and no concern.
In Feb 2025 I had an L4-L5 Laminectomy procedure. Six weeks later I experienced Ptosis symptoms followed quickly by Diplopia, and my Opthamologist had me admitted to hospital in May 2025 diagnosing Ocular MG.
Treatment began with increasing doses of Mestinon and Prednisolone then tapering off - as of June 2026 it's only 5mg Prednisolone. From Jan 2026 I'm on Mycophenlate 250mg (2 × 2x).
The Bad part: medication side effects played havoc on my bowels.
The Good part: medication seems to have worked. In June 2026 my Neurologist said I was almost symptom free.
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@ovationgx2
Thanks for sharing. I was wondering whether you've had any side effects from mycophenolate, such as nausea, vomiting, diarrhea, stomach pain, headaches, or tremors.
I ask because mycophenolate is also commonly prescribed for lupus, which is a condition I have as well.