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Urologist, Oncologist, Hematologist - who is in charge of my case?

Posted by geneva26 @geneva26, Jun 2 6:45am

After 8 weeks of radiation and completing 8 of 18 months of Orgovyx, I am having difficulty determining who is in charge of my case. The Urologist defers me to the Oncologist concerning future Orgovyx use vs active surveillance. The Oncologist defers me to the Hematologist who prescribed Orgovyx and who is not interested in discussing anything but the text book recommendation for treatment. Should either my Urologist or Oncologist take a leadership role in reviewing and making a recommendation concerning on going treatment?

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ededed | @ededed | Jun 7 3:56pm
In reply to @jime51 "@ededed I'm in the application process for HBOT and it appears I'll be approved, but my..." + (show)
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@ededed I'm in the application process for HBOT and it appears I'll be approved, but my current issue is that I have a level of bowel frequency and urgency that disallows my being locked up anywhere other than near a toilet for as long as two hours (I had six bowel movements between 3:45 A.M. and 9:30 A.M this morning, but then they stopped and I was able to attend a church service uninterrupted). I have written my gastroenterologist for help with a solution. He was reluctant to prescribe Lomotil at last visit due to its being a controlled substance, but Imodium is inadequate for me at this point. At my initial HBOT consult, the PA commented that they can take care of the bleeding and they can "help" with frequency and urgency. The Mesalamine suppositories I took in April worked pretty well, but I'm taking them again in June and they haven't affected me yet. I'm in my last two weeks of eighteen months of Orgovyx.

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@jime51
I had a choice of times for my HBOT sessions. I chose the session when I was least likely to have bowel urgency. I also worked on training my gut to go before I left home and before the start of the session at the hospital with the HBOT chamber. That meant leaving home and allowing for quality time in a bathroom stall.

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jime51 | @jime51 | Jun 7 6:06pm
In reply to @ededed "@jime51 I had a choice of times for my HBOT sessions. I chose the session when..." + (show)
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@jime51
I had a choice of times for my HBOT sessions. I chose the session when I was least likely to have bowel urgency. I also worked on training my gut to go before I left home and before the start of the session at the hospital with the HBOT chamber. That meant leaving home and allowing for quality time in a bathroom stall.

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@ededed Based on cases currently being treated, they only have early mornings open, my worst time. I’m going to wait until noon/afternoon open up.

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