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PSMA scan report is in : (((

Prostate Cancer | Last Active: 6 days ago | Replies (101)

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Profile picture for Jeff Marchi @jeffmarc

@surftohealth88
It was interesting that you are contacting UCLA RO when you live in the Bay Area. Are you considering getting treatment at UCLA or is this just for a second opinion?

The heart issues I’m having with ADT are starting to concern me. I’m speaking to my oncologist on the 15th and I’m going to bring it up with her, that maybe I should stop for a while. I know the Nubeqa will keep my PSA down, Just not sure how high my testosterone will go.

Recovery after the surgery is interesting. I’ve got At least four pretty thick stitches in my perineum. That makes it difficult to sit down, it hurts a lot. I rolled up a thick towel into a horseshoe shape and can sit on that without much pain. That’s the only thing that’s bothering me, This morning, it was burning a lot. I took two Tylenol and one 5 mg OXY and the burning is gone, And I’m having no Constipation issues, The surgeon told me no pushing, Have soft stools. I quit taking calcium for a few days and that seems to have made the difference. I’m not taking oxy continuously only when it’s really bothering me. Not being able to sit and lean forward means I have to tie my shoes by putting them on my knee sitting on the horseshoe towel. I can get dressed, standing up holding on with one hand and putting on all my underwear and pants one leg at a time. I put on my socks laying down, I have even alternately put on my underwear and pants laying down. Those are things you normally sit and lean forward to do. Maybe that’s too much information but at least it leaves people reading it an idea of what they can do if they get an AUS put in.

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Replies to "@surftohealth88 It was interesting that you are contacting UCLA RO when you live in the Bay..."

@jeffmarc

Oh that is definitely not too much information !

This will help many people who ever have any kind of pain in perineum area after surgery or biopsy and definitely to all that will have AUS device installed 👍.

You are doing really great considering that you are "fresh of the table" 😌 and try to rest as much as possible. Perhaps try to sit reclined so that perineal area has zero pressure for couple of day. Yes, towel can redistribute the weight but it is still a pressure around that area and it can perhaps even slow blood circulation somewhat. I know that it is tough for active person as you to stay still and rest, but perhaps just 2-3 days would be sufficient. ; )

It is good that you are doing everything to prevent constipation, don't forget Colace and some extra fiber too.

Keep us posted about your recovery : ))) , we definitely want to know how are you doing 💗 ! When is activation day ?! : )))