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@sunnygardens
I started a journal, writing down all the behaviors that were 'off', and share a summary with his Neuro doc each year.
Since you are there, you see things others don't who don't have as much contact, so your notes could prove very valuable.
Good luck!

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Replies to "@sunnygardens I started a journal, writing down all the behaviors that were 'off', and share a..."

@judimahoney thanks! I’ve been keeping a journal about this for almost a year, even though I hate journaling. Partly to confirm whether or not changes have happened, and partly as records for the doctors (if we ever see one).