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a very rare inflammatory disease called Multicentric Reticulohistiocyt
Polymyalgia Rheumatica (PMR) | Last Active: Jun 11 2:07pm | Replies (38)Comment receiving replies
My father developed this same form of RA when he was in his late 60's. He was initially put on methotrexate, and stayed on it until his death at 83. He was a brittle diabetic, with diabetes onset at age 19-20.
As I remember, he did great on the methotrexate without any side effects. However, the multicentric histioreticulo RA took a toll on his hand and finger funtion. I think the disease had progressed significantly before a definitive diagnosis was made. I urge you to get as many expert opinions you need so you can feel confident of your final decision.
I am tapering off pred myself. Down to 5mg from 40mg. Prednisone is not a drug you want to stay on any longer than you absolutely have to.
Godspeed to you as you make your decision.
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@kayept Oh this has been going on since March. I first went to a Derm. She took 5 biopsies and blood. At first the results were inconclusive. She gave me 50mgs of Prednisone. Then the shocking results of a rare disease came in. She put me on 40mgs. She set me up with a Rheum and an Oncologist. I have had xrays of my hands, lot's of blood, a Dexa and a Pet scan. Thank God there is no cancers or Autoimmune. So on Mon i have to go to the Rheum and he is going to try and give me the cancer drug. I have Vertigo so taking anything that will make me dizzy is not going to work. Thanx so much for your response.