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← Return to PSMA scan report is in : (((
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Prostate Cancer | Last Active: 6 days ago | Replies (101)
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Jeff, I hope the surgery worked and your heart is doing what it should be doing--or at least is as close to that as possible. And thanks all for the information on the various drugs and approaches. I do have some heart issues as well, so Nubeqa could be in my future.
I may be in the same headspace that Phil described of trying to keep up with everything and all the nuances and realizing it is VERY challenging. At some level, I too, am relying on the fact that I have very good doctors and I will follow their advice.
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@heavyphil
Trust - well it has nothing to do with control, trust has to be earned. ; )
So far every single step that was suggested and taken proved to be wrong, so tough luck trusting in our case. Actually, if I trusted doctors I would have lost my husband two times by now for 2 different medical conditions. The first one was dismissed as “heartburn” and the other as “viral infection” and if did not take my husband to ER the first time around with correct suspicion that he is having cardiac event and the second time me taking him to ENT specialist and insisting on biopsy, he would have been possibly dead by now TWICE (god forbid).
Anyway, just the fact that we have no idea if the groin node is cancer or not makes having a correct “plan” and approach basically impossible on a get go.
But one can not jump out of one's skin, what will be will be, I am just trying to make sure that I did everything possible to find him the best care and know that I did all that I could have done and everything that was possible to do.
How will things turn out to be at the and is out of my “control”, that is for sure … *sigh 😔
PS: Thanks Phil for reassuring me about neuroendocrine RO - yes, that is the only saving grace in all of this and the very thing that I am now "holding onto". That and the fact that this young RO of ours did not have big ego and sought opinion of his colleague.