← Return to Anyone living with Essential Thrombocythemia with JAK2?
DiscussionAnyone living with Essential Thrombocythemia with JAK2?
Blood Cancers & Disorders | Last Active: 2 minutes ago | Replies (585)Comment receiving replies
Replies to "@loribmt that is a pretty good response. I won’t take it off my driver’s license yet..."
Connect

@dewz13 Donation was something Mom had said she wanted to do. But instead of saying prayers at bedside and holding her hand as she died, I spent nearly an hour answering detailed questions about her health so that the donation team could determine which organs they might use.
Lesson there is that your family needs to know that you have ET and any other ailments. They may also not be able to say goodbye to you as they wish.
I am pretty tough, but I had nightmares for months about the donation process. I've told my son and husband no donation for my organs because of the ET, and I am glad to spare them what I experienced.