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Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

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marja27 | @marja27 | Jun 5 7:27am
In reply to @joannehart "@kathrihe I have been on Gabapentin for nerve pain for years. To be more effective, it..." + (show)
Profile picture for joannehart @joannehart

@kathrihe I have been on Gabapentin for nerve pain for years. To be more effective, it should be taken 3 times a day ie every 7-8 hours. My pain is increasing so I am wondering if I should be changed to Lyrica so I will ask my doctor. Has anyone changed from Gabapentin to Lyrical?

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@joannehart Hello! I changed it, because gabapetin made breathingdifficulties. Lyrica helped, but it has a lot of side effects to me (I am sleepy, remain in my thoughts, not so effective etc.)

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caregeraci15 | @caregeraci15 | Jun 5 9:18am
In reply to @angelap330 "Hi I just started following. And just need to know how everyone is coping with the..." + (show)
Profile picture for angelap330 @angelap330

Hi I just started following. And just need to know how everyone is coping with the pain

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@angelap330
Hi Angela! I cope with my chronic leg pain with a pain med, Oxycodone 5mg 4 times a day and Tizanidine, a muscle relaxer for spasms. I hope to find other ways besides medicine to cope with the pain. I'm going to see a new pain specialist and this group offers several ways besides meds to cope with the pain so I'm looking forward to this!

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rolleman | @rolleman | Jun 5 10:43am

Hi I’m Jackie from a small community in Southwestern Ontario (Canada). I developed chronic pain in 2012 following pelvic surgery and mesh complications. More recently I have been diagnosed with peripheral and small fiber neuropathy, POTS, and TOS. I’ve been an eager learner about the neuroscience of pain, and a patient advocate and “person with lived experience” within several healthcare settings. Looking forward to learning more from this grouo

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ranpattiwagner | @ranpattiwagner | Jun 5 11:03am

My name is Patti, I have CFS and Fibromyalgia, and arthritis in my hands and feet. I have chronic pain every day along with fatigue. I had to change my dose of Gabapentin and Nortriptyline because they were making me have muscle spasms and falling asleep during the day. Fortunately changing the dose helped, I have also taken Tramadol for the last 5 years, it does help dull the pain so that I can function. I am 76 years old.

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heisenberg34 | @heisenberg34 | Jun 5 11:48am

This is just an FYI for all you chronic pain sufferers. I just received my order of THC from Charlotte's Web. I just took one gummy for "Recover. 12.5 mg CBD, 12.5 MG CBG, 12.5 mg CBC, and 2.5 mg THC. I will try to keep everyone posted as to how it effects me. I am 78 with severe chronic pain. Pain pump with dilaudid and a myriad of drugs do very little to help my pain.

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davidyapp | @davidyapp | Jun 5 2:17pm
In reply to @ljcarr222 "@davidyapp Hi David my name is Lori. I had an ependymoma removed 21 years ago at..." + (show)
Profile picture for ljcarr222 @ljcarr222

@davidyapp Hi David my name is Lori. I had an ependymoma removed 21 years ago at L1/L2. It took me years to become mobile without an aids. It took moving to a dry warm climate. The pool is what really helped me. The doctors I had at the time said there was nothing wrong with me and it was all in my head. How did they find you tumor?

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@ljcarr222

My next door neighbor was a orthopedic surgeon in Lincoln NE; he requested for me to get an MRI (he wasn't my doctor but he was always curious of why I limped on my left side of my body); he ordered and MRI for me & we found a large tumor at the top of my spinal cord (inside) C6/C7; he told me that I need to go to one of the best spinal cord tumor hospitals (went to MD Anderson in Houston). My doctor was Robert Grossman & he told me it wasn't an emergency but he told my wife and I that my spinal cord could collapse if I didn't have the operation and become parapolygic. I was pretty lucky as my next door neighbor wasn't part of my medical network & he pushed for the MRI. At the time, I was complaining of lower back pain which had nothing to do with my ependymoma. Sometimes we get really lucky (early detection is extremely helpful)

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davidyapp | @davidyapp | Jun 5 2:20pm
In reply to @ljcarr222 "@davidyapp Hi David my name is Lori. I had an ependymoma removed 21 years ago at..." + (show)
Profile picture for ljcarr222 @ljcarr222

@davidyapp Hi David my name is Lori. I had an ependymoma removed 21 years ago at L1/L2. It took me years to become mobile without an aids. It took moving to a dry warm climate. The pool is what really helped me. The doctors I had at the time said there was nothing wrong with me and it was all in my head. How did they find you tumor?

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@ljcarr222

Let's face it ... most doctors have experience with spinal cord tumors; I was told at one time ... our tumors were 0.005% of total (really small).

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angelap330 | @angelap330 | Jun 5 3:06pm
In reply to @caregeraci15 "@angelap330 Hi Angela! I cope with my chronic leg pain with a pain med, Oxycodone 5mg..." + (show)
Profile picture for caregeraci15 @caregeraci15

@angelap330
Hi Angela! I cope with my chronic leg pain with a pain med, Oxycodone 5mg 4 times a day and Tizanidine, a muscle relaxer for spasms. I hope to find other ways besides medicine to cope with the pain. I'm going to see a new pain specialist and this group offers several ways besides meds to cope with the pain so I'm looking forward to this!

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@caregeraci15
Hooe everything work out for you. Let me know.

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currycat | @currycat | Jun 6 10:56am
In reply to @wyck3d "Hi I’m Wycked I also go by Wes! Im very new here! I suffer with Chronic..." + (show)
Profile picture for wyck3d @wyck3d

Hi I’m Wycked I also go by Wes! Im very new here!
I suffer with Chronic Pain everyday from waking up to going to sleep, not many days are great but I try to make each day better! I also have a HFX Nevro Stimulator that worked great for 3 years (up to a 75% and more for the nerve pain I also experience! Then I jumped in a pit to save my father after he flipped out of the boat and didn’t come up for awhile. Since Sept of 2025 my stimulator has not worked like it did and it has my mental health all over the place! Some days are ok but others I just don’t see the point in all that pain on top of other pain such as Fibromyalgia, Arthritis, degenerative disc, and a few other issues from a motorcycle wreck, which has now caused me to suffer with Chronic Daily Pain that I rarely get relief from!! But let’s suffer together is what I’m gonna say!!
To give you an answer on your question and an idea from my thoughts on this is any TRAUMA you have experienced in life can cause everyday pain especially as a child!!
I have done a lot of crazy stuff in my life but I highly believe in what I said about any Trauma and/or childhood traumas and even adult trauma!
I was luckily in a good home as a child but in my teenage years to adult life I have experienced a lot of different traumatic experiences!!
I hope this helps you!
If you would like to discuss stuff shoot me a message or dm me, I’m very new like 5 minutes in but yeah reach out please! I need help myself!
Your question is the first thing Iv read on the connect website over Chronic Pain!

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@wyck3d thanks for telling part of your story. I can communicate today but I'll be back. Wishing you a good day

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blowerk1216 | @blowerk1216 | Jun 6 11:13am
In reply to @caregeraci15 "@angelap330 Hi Angela! I cope with my chronic leg pain with a pain med, Oxycodone 5mg..." + (show)
Profile picture for caregeraci15 @caregeraci15

@angelap330
Hi Angela! I cope with my chronic leg pain with a pain med, Oxycodone 5mg 4 times a day and Tizanidine, a muscle relaxer for spasms. I hope to find other ways besides medicine to cope with the pain. I'm going to see a new pain specialist and this group offers several ways besides meds to cope with the pain so I'm looking forward to this!

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@caregeraci15 has anyone tried Amla, which is an extract of Indian gooseberries?

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