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Any phrase, idea that helped you navigate life with epilepsy?
Epilepsy & Seizures | Last Active: 1 day ago | Replies (22)Comment receiving replies
@louissc - good insights! I think this is one of the many reasons why I willingly participate in research projects. It’s a good way to invest in the future health of the whole community.
I remember my Dad participating in several research projects in the 1960s and 1970s through Mayo and Penn Rheumatology (for RA) that have since become standard treatments. I can benefit from these treatments since I, too, developed severe RA in my early 50s, long after my Dad passed away.
If we each do what we can, it helps everyone.
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@marianne72
Hi,
Unfortunately not many countries in this world are actively, or are willingly active due to reasons like manpower and limited population, are contributing much in the research front. That’s why countries like US with the economic might and also the population/cases has to first start the ball rolling, take the lead and maybe pour money into well known institutions like Mayo which can initiate researches which your Dad had so meaningfully be part of, start making it a worldwide effort in their respective countries wherever possible. Your Dad was active in non commercial research which resulted in achieving possible treatments for future generations and that’s priceless. If it was left to the big pharmas then, probably nothing would have happened. Not that they are to be blamed. After all they are still corporations which need to make money in order to produce future drugs and we can’t possibly expect them to solve every single problem. But for epilepsy, it’s time.
In Singapore, there are 150 newly diagnosed epileptic cases annually. That’s out of a 6.5M population which doubled over past 20 years due to immigration. That 150 cases may sound small, but if we factor in the non or wrongly diagnosed cases and the ball which started rolling around 30 years ago, it not a small % of population at all. Epilepsy can’t possibly be just an issue here.
Cheers,
Louis