Hi @dmcj Oh gosh, I’m sorry to see that your daughter is so sad and depressed right now with the changes in her health. That’s very understandable when she feels like crud. Words will mean little to her right now. But there is always hope!

If you’re heading to Mayo-Rochester, that is my home away from home with the amount of time I’ve spent there. Whether Rochester or one of the other campuses, I know your daughter is in the best of hands! Mayo’s hematology departments are second to none. I’m living proof of that!

The collaborative team approach at Mayo is also an incredible experience. Your daughter will be seen by a specialist and then the team takes over from there. If other doctors from different areas are required they just magically pop up on her team. You are most welcome to go along with your daughter to her appointments to be an extra set of eyes and ears. Take a small notepad or phone to make notes.
Also make sure her Patient Portal is set up. That will be the lifeline between her team and herself. All her tests results, appointments and notes will be on that portal.

Are you visiting Mayo Rochester?