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@janemc
I had a different question. My daughter was 24 has been off interferer and Beyer for a few weeks. She’s allergic to be Remi. Can’t take that and interferon is closer so much so many side effects. We’re going to Mayo Clinic in a week or two to see what other things are going on, however, she has severe nausea and severe fatigue. I understand fatigue is a part of this, but nausea is not really a part unless you’re already on medication she’s unable to eat anything without throwing up and she is having a hard time even staying out of bed because the knowledge and fatigue we went for an hour on car ride day and that’s all she can handle this is so debilitating and so upset and just feel like I’m secured not a loss. I’m putting all my eggs in the mayo gasket and it’s frightening.

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Replies to "@janemc I had a different question. My daughter was 24 has been off interferer and Beyer..."

@dmcj

What your dear daughter is suffering is indeed frightening.

The horrible truth is, it's when we (or our loved ones) most need help that we discover the limits of what doctors know and can do. This is especially true when the problem is rare and poorly understood.

Taking your daughter to Mayo is your path to getting the best help possible.

Of course you feel scared and desperate. But as you say: "there might be some hope."

Hang on to that hope! And please remember, we're here for you.