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@arowan65 Welcome. I am a cervical spine fusion patient. From experience, I know that spine injuries cause a lot of muscle spasms that start moving the vertebrae around. My C1 and C2 would twist on their own with some sideways shifting as well. All of that causes pain because of all the muscles that connect the skull to the spine when those muscle get stretched by muscle spasms in some of the other muscles. What I might suggest is a good physical therapist. A PT can determine with their hands if your spine is put of alignment and gently tweak it back in place. What has helped me is a PT who also does myofascial release to loosen the overly tight muscle. I had a lot more problems with this prior to the spinal fusion of C5/C6.

I have also had my lower jaw go out of alignment and that has a relationship with C1 and C2 where they influence each other. I have been working with a dentist who does treatment for TMJ issues and who makes oral appliances that are expanding my jaw because it is too narrow. That along with PT has helped my neck stay aligned. It has been 10 years since my spine surgery and my neck is better than before, but I can cause a muscle spasm with overuse of my shoulders that affects my neck. I have learned how to stretch and for the most part can correct muscle spasms and get back into better alignment on my own.

When C1 and C2 were rotated, if I looked upward, it caused vertigo (before spine surgery) and doing that action would likely kink the vertebral artery that runs inside the cervical vertebrae. Rotation would stretch it, and looking up would then bend it. It's not meant to stay like that in a stuck position, but that can happen because of muscle spasms.

It sounds like you may have other levels that developed problems after your disc replacement. With issues described as foraminal stenosis, that is the nerve root which is very predictable where it will cause pain because it is a specific nerve. If you also have some spinal cord pressure of compression, that would be a bit unpredictable as to where symptoms happen, and pain can change location when you move our neck because it can change where the spinal cord may be compressed. The spinal cord needs to glide inside the spinal canal as you change position or bend your neck.

Has your doctor explained structurally how your symptoms are generated by your issues?

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Replies to "@arowan65 Welcome. I am a cervical spine fusion patient. From experience, I know that spine injuries..."

@jenniferhunter Wow Thank you for sharing your story. the doctor who replied my disc I have seen a total of 4 times in 6 years. I am seeking a second opinion. I had an appointment with the Dr who replaced my disc 6 years ago end of May When we were walking out the door my spouse said it seemed like all he did was admire his work. He didn't explain anything to me. He said it's too much for one appointment. I think he is about ready to retire so just getting in as many office visits as possible.

My physical therapist does myofacial release my neck starts to stiffen later in the day. My spouse works on my neck and upper back as well. I have been in off an on for 2 years. I also have a gym routine and my PT owns the gym I attend wrote up my routine.
I had a steroid injection 2 months ago at c5 c6 and it gave me about 40% relief . The effects have worn off so I started an oral course of steroids which have helped with dizziness, loss of spatial awareness and brought pain back down. Steroids are not a long term solution.
I have RA and severe osteoporosis . After 4 years of bisphosphinates my hips are almost normal but my spine is the same -3.6. I had my 3rd dose of Recast last March. So, osteoporosis with a disc replacement is of concern to me as well.
Two years ago I had a myelogram and it showed bilateral foraminal stenosis at the level of the disc replacement c6 c7 and the other levels were fine. Now, the latest myelogram in May report says there is too much artifact to see the disc replacement but did show a prominent disc bulge and severe recess and foraminal stenosis on the right and moderate on left. I"m not sure if Mayo has better ways to image the disc replacement but that is who I am trying to get in a second opinion from.