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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: 2 days ago | Replies (6026)

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@johnbishop

Hello @fuzzy1southernga, Thank you for the private message. You mentioned being diagnosed with progressive idiopathic sensory motor polyneuropathy in early June. You said you were overwhelmed with the amount of learning needed and you enjoyed that Connect was laid back and informative which made it easier. I thought I would respond to your private message so other members can share their experiences with you also and at the same time I wanted to suggest a few more discussions that you might find helpful.

- Member Neuropathy Journey Stories: What's Yours?: https://connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours/
- Axonal Sensorimotor Polyneuropathy: Looking for someone to relate: https://connect.mayoclinic.org/discussion/someone-to-relate/
- Polyneuropathy: https://connect.mayoclinic.org/discussion/polyneuropathy/
- Does anyone find that a type of shoe helps your foot neuropathy?: https://connect.mayoclinic.org/discussion/does-anyone-find-that-a-brand-of-shoes-helps-your-foot-neuropathy/
- If the shoe fits, wear it!: https://connect.mayoclinic.org/discussion/if-the-shoe-fits-wear-it/

You mentioned being fit for orthotics made the seriousness of the disease real to you. Have you found anything that gives you any relief?

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Replies to "Hello @fuzzy1southernga, Thank you for the private message. You mentioned being diagnosed with progressive idiopathic sensory..."

In addition to neuropathy and severe allodynia on my right side including my foot, shoes and socks are extremely important. I also have drop foot and need to wear a leg brace sometimes if walking in rough terrain. I live in Wyoming of that helps clarify that statement at all.
I’ve switched to Brooks tennis shoes. I only buy one pair of needed at a time, replacing the larger pair for my brace only maybe every couple of years or so if that.