Replies to I also have mHES/CEL (but am PDFGRA/PDGFRB and FGFR-1 negative), so its technically CEL-NOS. I only...

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Blood Cancers & Disorders | Last Active: Jun 7 10:01am | Replies (6)

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@eleanorb96

I also have mHES/CEL (but am PDFGRA/PDGFRB and FGFR-1 negative), so its technically CEL-NOS. I only ever met one other girl with it and she passed away last year.

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Replies to "I also have mHES/CEL (but am PDFGRA/PDGFRB and FGFR-1 negative), so its technically CEL-NOS. I only..."

Lori, Volunteer Mentor | @loribmt | Jun 7 10:01am

@eleanorb96 There are a few other members right here in Connect for you to meet who (or a loved one) have also have been diagnosed with Hypereosinophilic syndrome (HES). I’ve provided a link below for all the discussions involving HES. Feel free to look through them and join in the conversations!
https://connect.mayoclinic.org/search/
What type of symptoms do you have with HES? Are you currently in any treatment for this?

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