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Anyone living with Essential Thrombocythemia with JAK2?
Blood Cancers & Disorders | Last Active: Jul 18 8:22am | Replies (622)Comment receiving replies
For many of us with ET, the cause is a mutation in one of the three proteins that govern blood cell production.
Those proteins are JAK2, CAL or MPL.
So if your bloodwork shows an abnormality in your JAK2 protein -- you have JAK2-driven ET.
Does that help?
Replies to "@biggermike3 For many of us with ET, the cause is a mutation in one of the..."
Hi Jane. Oh ok thank You.
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@janemc
I had a different question. My daughter was 24 has been off interferer and Beyer for a few weeks. She’s allergic to be Remi. Can’t take that and interferon is closer so much so many side effects. We’re going to Mayo Clinic in a week or two to see what other things are going on, however, she has severe nausea and severe fatigue. I understand fatigue is a part of this, but nausea is not really a part unless you’re already on medication she’s unable to eat anything without throwing up and she is having a hard time even staying out of bed because the knowledge and fatigue we went for an hour on car ride day and that’s all she can handle this is so debilitating and so upset and just feel like I’m secured not a loss. I’m putting all my eggs in the mayo gasket and it’s frightening.