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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: 5 hours ago | Replies (6019)

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@jesfactsmon

@david33 Laura, you and your husband have clearly had more than a normal person's share of heartache and grief. I am so sorry to know all of this, believe me.

I would organize the medical history in a very orderly way:

1. Make it chronological, start with your first medical issues & doctor visits to the next, next, next and finally the most recent
2. For each medical issue list just the symptoms you had at that time, not ones that came earlier or later
3. For each doctor visit include doc name and speciality, symptoms he/she treated you for, medications that were prescribed
4. after starting the prescriptions, describe the results of taking them and how long you were on them

Put in important details, leave out anything that is not relevant, as well as personal issues and feelings. You want it to be concise and clear for others to be able to glean info from.

You probably want to do this on a computer so you can edit, I am sure there will be lots of edits needed as you go along. The result of completing this is it will serve as a reference for you as well as any docs going forward about your history. As you are writing it, or afterward, you might begin to notice patterns and things you didn't notice before; your journals may turn out to be very valuable to you because of doing this.

I know losing your home and all of your beloved pets in the fire had to be an extreme trauma for you. Do you have someone to talk to about all of this? Have you seen any therapists? It sounds like you do need some mental health therapy, but that is not always easy to find or get. I would recommend using this forum, Mayo Connect, a lot. But when you post, you will get the most helpful advice if you can think before you write about precisely what you would like to have input about. Try to help others to understand your main dilemma and problem so that they can give you better advice. This is a tool for getting ideas for yourself.

I hope maybe this might be helpful to you Laura. My heart goes out to both you and David. Hank

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Replies to "@david33 Laura, you and your husband have clearly had more than a normal person's share of..."

@david33 Laura (and David) I thought of something while I went for a walk, and very possibly this is already built into your relationship, but in any case here goes:

I asked in the previous post about whether you have access to someone you can confide in. If you guys can do it, the best thing you can do for yourselves is talk to each other, about your pain, your traumas, everything you both are going through. If you have enough trust of one another, this can be a great help, in addition to any outside therapy. That is one of the really great things about having a loving and trusted spouse or partner. Keep all lines of communication open between you.

That was my thought. I hope it's helpful. Best, Hank