Connect
← Return to Has anyone had cramping pain in left side nearing 3rd PRRT treatment?
Discussion
Has anyone had cramping pain in left side nearing 3rd PRRT treatment?
Neuroendocrine Tumors (NETs) | Last Active: Jun 5 8:34am | Replies (18)Comment receiving replies
Hello All, I’m set to have my 3rd PRRT treatment session at the end of June: amongst other severe pains & headaches, as well as constant crushing fatigue, I’ve had unbearable cramping in the right side of my abdomen since my treatment started in March of 2026 but I’m not being treated for either that or the flushing that is getting increasingly worse now, with the passage of time. I’m hopeful that PRRT will eventually demonstrate some benefit for me because this disease has been really rough on me. If I had all this to do over again, I would never have started with any treatment whatsoever, not even the Whipple surgery (31 October 2023), as I think having taken medical advice, I’ve only severely decreased my quality of life: I think that, in my case, letting the disease take it’s natural course would’ve been the best option FOR ME. I wonder, has anybody else felt the same way? Kind Regards, Carol in Canada
Replies to "Hello All, I’m set to have my 3rd PRRT treatment session at the end of June:..."
@kaiulani Carol
Between my 2nd & 3rd treatment I had to take a break I had a bunch of MRIs and an echo cardiogram and the results led to inflammation I was put on steroids for 10 days and the major dizzy spells I was having went away
I started my 3rd treatment 2 weeks late but continued to finish all 4 treatments my last treatment was in November of 2024 and I have been stable since
I was given octreotide right after my treatment to control the flushing and diarrhea and after my treatment was complete I have continued to get octreotide every 28
I was told that PRRT can cause inflammation maybe that is what you are experiencing
Unfortunately everything has side effects I have had my share
Many of times when I am having a really bad day I ask myself
WHY????
I think we all have
But like all of us our need to go on takes over and we get the strength to move forward
Don’t let it win
As my dad always said forget yesterday you can’t change it concentrate on today and make a better tomorrow
You got this!!
Be well
Connect
@kaiulani: after the Lutathera PRRT session are you getting the Lanreotide shot within a couple days? Speak with your Oncologist regarding flushing and overall symptoms, perhaps your body just needs more Lanreotide to control symptoms?
PRRT can be a great treatment if you can deal with some discomfort: shrinkage of tumors with some completely not scannable… but STABLE tumors are a WIN! Just my 2 cents.