Thank you, Lori. I appreciate your response , concern and kind words.

Yes, I was very disappointed for the BMT cancellation. Everything was lined up including lodging and I was ready. I had completed the many body tests and all is well. My visits for Total Body Irradiation. Except for the two cancers and Rheumatoid Arthritis I am in great shape. That is all good to know in any case.

I remind myself that I am in a better place than many. It is unfortunate and frustrating that it took months to determine that the first donor would not be cleared. Hopefully the next donor wont take as long.

It does help that I feel physically better than I have in 2+ years. I cannot overstate how amazing the difference is since the Vonjo took effect.
Given that Vonjo is $28.000. 00 per 30 day supply , I am concerned because I only have 1 month remaining refill on the approval from my healthplan. I realize they may fill again with no troubles. I would also not be at all surprised if they reject it. The waiting is hard enough. I don't want to go backwards.

Given the amount of time it takes for a new donor to be identified and willing, tested etc ? We chose to make the best of it. My husband and I have decided to make a long drive to see kids and grandkids, leaving next week.
Loving on the babies and time with the kids should help with the antsy waiting. We will see lifelong friends as well. The upside eases the situaton. Like it or not , there was a reason this happened. I am going with that.

I was planning to post an update after I heard about the second potential donor. I will be sure to update when I have more to share. I am hoping the BMT occurs in July and as hard as it is, preparing myself it may take longer.