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Anyone living with Essential Thrombocythemia with JAK2?
Blood Cancers & Disorders | Last Active: Jul 18 8:22am | Replies (622)Comment receiving replies
Hi, @bobbiejo80 Sorry to hear you’re also a headache sufferer with hydroxyrea. You mentioned you’ve been able to back down from your original higher dosage to now just 4 days a week. Did the reduction help with the daily headaches?
Replies to "Hi, @bobbiejo80 Sorry to hear you’re also a headache sufferer with hydroxyrea. You mentioned you’ve been..."
@loribmt yes it helped a lot ty
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@loribmt
I guess for older people a lot of people are taking hydroxy, but for the younger people, they don’t recommend that so my daughter it’s not recommended for her and we had our first intake at the Mayo Clinic and now they call back and I guess they set up a team according to what your record say a 24 she’s just so sad and depressed right now she’s pretty strong girl, but this is really taken over the edge. I’m glad to hear you’re doing better and there might be some hope.