@judithiam
Its a shock to hear this diagnosis. Especially given you are feeling pretty good. Getting a second opinion is a good idea. I can relate.

June 2025 I was diagnosed with CMML-1. after a Bone Marrow Biopsy Unlike you, I did not feel well and had many symptoms for almost 2 years at that point. I had "off" bloodwork during that 2 years that were dismissed by multiple physicians.
When confirmed with local Oncologist, I was told I was "wait and watch" with bloodwork every 3 months.
On the second course of bloodwork in December 2025 (and feeling poorly) I was sent to Mayo as my bloodwork had changed. again Mayo Clinic Jacksonville FL met with me, did another Bone Marrow Biopsy.
In January 2026, I was also diagnosed with Myelofibrosis 3+/3 and Oncology sent me to the Bone Marrow Team in Jacksonville. A helpful and kind group of physicians and nurses. I am well cared for and beyond thankful.

My understanding is many people can go for years before CMML -1 becomes a real issue. Not all blood cancers are aggressive. In my case, the CMML cancer blasts are low and have not changed. CMML was the initial diagnosis but not the problem, the Myelofibrosis diagnosis is.

I am now waiting for my Bone Marrow Transplant. It is an extensive and slow process. Many tests and last week my 4th Bone Marrow Biopsy. My BMT was scheduled for June 11th but cancelled last week as the 1st donor could not be "cleared" to donate. The second potential donor was to be contacted last week. It will be a minimum month plus before that journey begins, if I am lucky.

Im fortunate that my symptoms are being treated with Vonjo. With the exception of the intense itching symptoms, I feel so much better, a much smaller spleen allows me to eat normally, fewer episodes of extreme fatigue, far fewer episodes of Bone pain and night sweats. Gradually my bloodwork has improved.

Ask questions about your specific diagnosis!!! If you are being treated at Mayo Clinic, I believe you will find them very responsive and helpful.

I wish you all of the best .