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What’s it like having an ICD? I don’t want to do it.
Hypertrophic Cardiomyopathy (HCM) | Last Active: Jun 7 1:35pm | Replies (34)Comment receiving replies
@krb48
What is your reluctance in getting one? Yes it is surgery but consider minor and outpaitent in most cases.
I think those who have had one implanted and has activated can tell you they are life savers. With me I have had about a dozen shocks over the 20 years I have had one.
I have come to feel the device is there to save me if I go into tachacardia. What my cardiologist told me that once you reach 30 % EF (ejection fraction) a ICD is recommended. You have not got there yet but very close.
I am not familiar with hereditary HCM but I have HF caused by cardiomyopathy. My HF doctor just put me on Jardiance not for diabetes but research was showing can help remodel heart and improve EF.
Talk to your doctors about your hesitation, explore medications with them, or see a second opinion.
Replies to "@krb48 What is your reluctance in getting one? Yes it is surgery but consider minor and..."
@jc76 My doctor put me on Jardiance also. After only three days taking Jardiance, I experienced a frightening episode of adrenaline rush and confusion. It was terrifying. I think it is removing too much glucose or something. I stayed very hydrated so don't know what caused this other than too much blood pressure medication? I am afraid to stay on this. I want to keep taking only my Entresto and Metoprolol. Never had scary side effects with them. Can't get into my cardiologist right now because I am waiting for referral to an Electrophysiologist and supposed to be taking all three medications for now. Not sure what to do :).
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@jc76 Hi! I am a little confused because you wrote you have cardiomyopathy but not hereditary HCM. That is new to me, would you be willing to explain nonheredity cardiomyopathy to us? Thank you.