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lesliek808 avatar

Are you ever free of breast cancer?

Breast Cancer | Last Active: 1 hour ago | Replies (16)

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Profile picture for mistymar @mistymar

I’ve often thought the same. I guess that’s why they talk PTSD on so many of us. My doctor is only doing 5 years of ai - said research show no difference between 5 and 10 years (and this was on first visit, before staging etc). But then what happens after that. While I have no desire to stay on this stuff forever, I do question if stopping will allow new tumors to develop and then will really have QOL issues because of age. Don’t want to go through this all again. I was oncotype positive so did go through surgery, chemo and radiation and damage from that is still lingering. Now all the side effects of ai and how many of these will become permanent. While I know it’s controversial, my tumor markers have never gone normal and continue to increase periodically to pre-surgery levels (but tests still negative - just hate having to go through them every 6 months). I’m just rambling now so will stop but will monitor this closely.

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Replies to "I’ve often thought the same. I guess that’s why they talk PTSD on so many of..."

@mistymar My survivorship doc said I may want to consider Raloxifene after stopping tamoxifen. She suggested my endocrinologist may consider it a good med for my bones (osteopenia) but it also has breast cancer reducing action just not as strong as AIs and tam. Raloxifene does not increase uterine cancer risk and has been shown to be better for brain function. I know I’ll feel safer taking something when I stop tam.

@mistymar what was your Onco score and lingering side effects if you don’t mind?