Living with Neuropathy - Welcome to the group

Hello everyone, my name is Laura and I'm in need of help and understanding of Neuropathy. I know it comes in different ways and it causes different problems in everyone. I went to my doctor today for pain in my stomach area, and the doctor put me on gabapentin 300 mg for right now and raise it after two weeks to see if that helps with pain. My main concern is eating and doing exercise.
I get pain after I eat any kind of food, so in order to not have pain I don't eat. Then there is exercise...if I try to gather things up from the yard, floor or reach to the bottom drawer like I'm trying to touch my toes mutable times I get pain with bulging of the muscles / abhisions from mutable surgeries is causing me lots of issues. It's getting to the point to where I want to sit in a corner and never come out. I even had a doctor tell me it's chronic pain to where my brain is making excuses to why I can't eat so I have to force myself to eat.

I hate taking medication because I don't want to get addicted to them like my family/friends are addicted.
Drugs and alcohol runs through my family.

Is there any help for me, or is this something I have to learn to deal with?

@bustrbrwn22
I know you are starting MFR and are looking in to kratom, and both sound good for you. Another suggestion would be medical marijuana, if you have not tried that yet. Not sure if it is legal where you are yet.

And with the pain level you are at, you should not be being denied opioids if you want them. I am sorry they are hassling you about getting them (if I remember correctly). What about morphine? Is that considered the same or different from other opioids, I am not sure.I just know another member, Jim @jimhd gets it from his doctor, and it is one of the only things that helps him. Maybe you could ask him about his experience with using that.

You really need someone to care about your pain level besides yourself. Do you have support from family, friends? I hope you are not alone in this.

My best, Hank

@jimhd could you please private message me. I’d like some of your wisdom on pain medication if you are willing? Thanks much.

Hello everyone, my name is Laura and I'm in need of help and understanding of Neuropathy. I know it comes in different ways and it causes different problems in everyone. I went to my doctor today for pain in my stomach area, and the doctor put me on gabapentin 300 mg for right now and raise it after two weeks to see if that helps with pain. My main concern is eating and doing exercise.
I get pain after I eat any kind of food, so in order to not have pain I don't eat. Then there is exercise...if I try to gather things up from the yard, floor or reach to the bottom drawer like I'm trying to touch my toes mutable times I get pain with bulging of the muscles / abhisions from mutable surgeries is causing me lots of issues. It's getting to the point to where I want to sit in a corner and never come out. I even had a doctor tell me it's chronic pain to where my brain is making excuses to why I can't eat so I have to force myself to eat.

I hate taking medication because I don't want to get addicted to them like my family/friends are addicted.
Drugs and alcohol runs through my family.

Is there any help for me, or is this something I have to learn to deal with?

@sunnyflower @bustrbrwn22 @jesfactsmon

Thank you all for your concern and encouragement.

@sunnyflower. The reaction was just related to Lyrica, and everything went back to normal after being off it for 2 days. That's the first time anything like that has happened to me. When I start a new medication I'm aware of the effects they have the first few weeks - usually cognitive deficit and maybe drowsiness - but as my body adjusts to it, those things fade away.

My way of dealing with suicidal thoughts: I think about how it would impact my wife and family; I tell myself I will stay safe until...whatever goal I have, usually an upcoming visit with our kids and grandchildren; I promise myself to put the thoughts on hold until tomorrow.

Hank, I've never owned a gun, which is probably a good thing, since that's the most common method for men. Pills are usually readily accessible for me, so that's been my mode. @bustrbrwn22. 200 sleeping pills! Someone found you? I'm sure that's why your doctors don't want to prescribe narcotics for you. They care about your safety. Have you ever been able to set goals for staying alive? When I started doing that, I could only project to one day, and after some months of that I could do a week, and so on. Being able to set a goal 6 months out was a big accomplishment.

I know that when neuropathy pain got bad it affected my depression and suicidality. There's an ongoing link between pain and mental ill-health for me. I talk with my therapist about that often.

Gotta quit for tonight. Thanks again, everyone.

Jim

I am taking my first magnesium pill tonight. Don’t want to get my hopes up. It’s 250 mg I think

Hi Hank,
I know exactly how this feels. I have pain that keeps me awake, and when I won't go to bed until my body gets exhausted that's when I will climb into bed and pass out, when it's time to get up (it feels like I'm being pulled from a deep sleep) I don't feel or move, and I fall back to sleep again (when I think of the time of the day it might be, I pull or have someone to pull me into a sitting position), I pray that I don't wake up, but once I'm awake I thank God that I can be with my family no matter how much pain I'm in. I'm thankful for my family for helping me when I feel low about myself.

Thank you Colleen. I was diagnosed in July with small fiber neuropathy and don’t know anything aboutitexceptit burns like hell. I became ill in February and was first diagnosed with gastroparesis, then after about a month the burning started and they thought it was related to the new meds I was on for it. I wound up in the ER 3 times in one week because I could not stand the burning. I could not sleep and it literally was driving me insane. After seeing a few doctors I finally was sent to a neurologist where he did some nerve tests and a few skin biopsies from my leg. That was what nailed the diagnosis and I was put on gabapentin. I’m still trying to figure out the right dosage and just increased to 1500 mg a day. The side effects only seem to last a few weeks. The most annoying one is if I am talking for a long time all of a sudden my mouth stops working for a minute and I have to take a minute and then start talking again. I am hoping to learn more about my condition and how to relieve it. One question I have is does humidity make the burning worse?

Hello everyone, my name is Laura and I'm in need of help and understanding of Neuropathy. I know it comes in different ways and it causes different problems in everyone. I went to my doctor today for pain in my stomach area, and the doctor put me on gabapentin 300 mg for right now and raise it after two weeks to see if that helps with pain. My main concern is eating and doing exercise.
I get pain after I eat any kind of food, so in order to not have pain I don't eat. Then there is exercise...if I try to gather things up from the yard, floor or reach to the bottom drawer like I'm trying to touch my toes mutable times I get pain with bulging of the muscles / abhisions from mutable surgeries is causing me lots of issues. It's getting to the point to where I want to sit in a corner and never come out. I even had a doctor tell me it's chronic pain to where my brain is making excuses to why I can't eat so I have to force myself to eat.

I hate taking medication because I don't want to get addicted to them like my family/friends are addicted.
Drugs and alcohol runs through my family.

Is there any help for me, or is this something I have to learn to deal with?