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DiscussionAnyone living with Essential Thrombocythemia with JAK2?
Blood Cancers & Disorders | Last Active: Jul 18 8:22am | Replies (622)Comment receiving replies
Replies to "@leene808 I have attended a few symposia abt ET and ran an online support group for..."
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@nohrt4me hello there ! she did not mention that being younger would mean worse symptoms. She was just amazed at how long I’ve been dealing with this. I asked her if she had any other patients who have had this disease for as long as I’ve had and she said yes, and that made me feel a little better about my future. When you get to this point, it’s always a question about how much longer you have but 20 years ago I knew I was gonna live at least that long. It’s a chronic disease manageable with medication and healthy lifestyle and I don’t have the TIAs or the migraines anymore, so I’m grateful that I got my platelets down.