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Polycythemia Vera and low iron
Blood Cancers & Disorders | Last Active: Jun 12 12:22pm | Replies (34)Comment receiving replies
Do you have any abdominal bloating and pain associated with this condition I've been tested for everything but pv I have a epo of 4.2 and high hemoglobin and high hemocrit for over a year just curious what if any symptoms you got later as you were asymptomatic before diagnosed
Replies to "Do you have any abdominal bloating and pain associated with this condition I've been tested for..."
@jonnypouchw hi! It has been nine years since my PV diagnosis and (lucky me) I am still asymptomatic. Just have the low iron now, phlebotomies continue every 6-12 weeks. I did look at my medical records and noticed I had high hemoglobin/high hematocrit for over 10 years before diagnosis.
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@jonnypouchw I had a red face and some occasional stinging in my shin bones. Some muscle and joint pain also but I’m menopausal so I disregarded that. No stomach issues until put in the hydroxyurea. I’m going to look up the aspirin and iron level thing but the aspirin is supposed to keep the blood thin to avoid clots so not sure if it would be good to cut it down?