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DiscussionWhat tips do you have for the caregiver after a total pancreatectomy?
Caregivers | Last Active: Aug 14 4:24pm | Replies (19)Comment receiving replies
Replies to "The original surgery for the total pancreatectomy didn't go as planned. As the surgery progressed, there..."
@christinemb I am new to this forum. But I hear every word of what you are saying. I’m sitting in the hospital while my husband has his 5th procedure to drain nercrotic cysts and adjust the stents . We have been going through this for over 4 months. I’m thankful for the doctors that know how to do these procedures but no answers other than waiting. My husband was actually home for 5 weeks this last time but stubborn and in pain for 2 of those weeks. I am trying to keep an every large house and yard afloat while still raising 2 teenage grandkids. I am pretty strong and also sooo Angry about all of this. Today when he left for the OR was the first time I felt totally hopeless and sad. I’m not a crier but today I am. Hugs to you.
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@christinemb - I am so sorry to hear all of the things that you and your husband have gone through. It is a lot to process and it's been over six years since I had a total pancreatectomy and I still have challenging days. I had a nutritionist that specialized in type 3c diabetes early on and that really helped get me on the right track and glucose/diet stabilized. Happy to help if you need anything.
Take care,
- Matt