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The original surgery for the total pancreatectomy didn't go as planned. As the surgery progressed, there was a suspicion that the pancreatic cancer had already metastasized, so only the gall bladder was removed. Tissue samples were taken, sent to the hospital lab and to Mayo. Results showed that the samples were not pancreatic cancer (good news!) but were a form of mesothelioma (not so good news). It was decided that the best course of action would be to perform the total pancreatectomy after all. So...three weeks after the first surgery, the second was done. He's only 11 days home, still in pain, minimal/no appetite (lost 40 lbs since this journey began), and now diabetic as well. He seems to be getting a little better every day, but there's been so much to learn about his new diet and glucose control that it's been overwhelming. A new course of chemotherapy for the mesothelioma will begin as soon as the surgeon and oncologist feel that he can handle it. As for me, I'm just tired and find myself too often close to tears. So much emotion swirling around in my head, but I'm handling it okay, I think. It is pretty lonely, though. Thanks for checking...I do appreciate it.

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Replies to "The original surgery for the total pancreatectomy didn't go as planned. As the surgery progressed, there..."

@christinemb - I am so sorry to hear all of the things that you and your husband have gone through. It is a lot to process and it's been over six years since I had a total pancreatectomy and I still have challenging days. I had a nutritionist that specialized in type 3c diabetes early on and that really helped get me on the right track and glucose/diet stabilized. Happy to help if you need anything.

Take care,

- Matt