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What’s it like having an ICD? I don’t want to do it.
Hypertrophic Cardiomyopathy (HCM) | Last Active: Jun 7 1:35pm | Replies (34)Comment receiving replies
I have been diagnosed with AFIB and was put on solotal but it's not working my cardiologist has recommended a difibilater but I'm kinda nervous about it my heart rate goes up to almost 300 beats a minute I have been hospitalized 5 times this year for AFIB can anyone give me some advice on this matter thank you
Replies to "I have been diagnosed with AFIB and was put on solotal but it's not working my..."
@myheart26
And ICD is like having your own EMS in your chest ready to help when needed. Look at it that way and know it is extremely effective in bringing heart rhythm back to normal. It is usually an outpatient surgery and millions done over and over.
I have had a ICD/Pacemaker for over 20 years and on my 3rd device. The normal battery last about 10 years.
I have never regretted having one put in as has saved me multiple times. I don't even know it is there now unless needed (I have dual device as have pacemaker also). Mine pulses my heart at 70 bpm as with my medications my HR would be down in 40s.
@myheart26
Get a 2nd opinion if you’re not sure and scared
@myheart26 Welcome to Connect, I believe this is your first post. I am sorry you needed to be hospitalized several times and the medication did not help. Are you under care at a COE (Center of Excellence)? Several participants have written responses attesting to their gratefulness on having a device. We cannot give medical advice, that's reserved for medical professionals. I have an ICD (defibrillator and pacemaker combo) named Buddy. New things are stressful for sure, I was dizzy and giddy and had syncopes because of arrhythmias after a septal myectomy, none since Buddy became my constant companion. Do read all you can about your condition and ask your doctor lots of questions.
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@myheart26
I have had 2 incidents of sudden cardiac arrest. I have HOCM and Cardiac Amyloidosis (stiff heart syndrome). I also have complete heart blockage so my ICD (pacemaker side) is working 100 percent of the time so my heart is completely dependent on my ICD. Having an ICD for me is not a choice. It's not a problem and the battery is good for 10.8 years at the current time. If you need one get it put in.
Jim