Living with Neuropathy - Welcome to the group

@sunnyflower.. I took my bone density test a few years ago, and while i was talking to the technician, she told me her mom is a pharmacist and told her Bisphosphonates is a "bad" drug. My doctor prescribed it and i took it for one day. I felt so bad, my chest tightened up and it took a good ten days for it to go away. I told my doctor I'm not taking it. I'm due another bone density test in November, so I am faced with a decision again. I have known people who had been on this for years and still have bone fractures. I read extensively about the drugs and to be honest, they don't have guarantee that i am looking for. Maybe they are just not for me.

@jesfactsmon Hank, absolutely you can use my name. Don’t mind at all. I will do the same....use the tea when I start feeling the headache coming on. I figured I am do for one soon. It is worth a try. Who knows it maybe a combination of my brain healing and misalignment of my eyes. I can feel It when my brain makes new connections. It happened more often, of course, in the beginning. The headaches were twice weekly. Now I can understand why the doctors In the hospital gave me coffee daily to drink. It was OK because my blood pressure was low( thanks to my diet and exercise). At discharge I was given a prescription for a pain killer which I never filled. At home I thought the caffeine may have been part to blame for the headache. I did not make coffee a habit in order to avoid any caffeine withdrawal symptoms. I even tried hot black tea instead but, nonetheless it made no difference.

The herbal tea is worth a shot. It certainly has a lot of ingredients. Never tried those in combination. Glad Linda has found some relief through the tea. Beats the OTC pain killers. Good thing she cannot take them. I don’t use those either.

I believe barometric pressure can be the cause of many things. I never researched it. Years ago, my OBGYN doctor told me that most babies were delivered during a snow storm(it was winter then). I didn’t give that comment much attention but sure enough my daughter was born during a snow storm.

Thanks for her recipe. I will try it iced and let you know if it helps. Toni

@avmcbellar. I used to work with a lady that has migraine all the time. Her remedy was triple shots of espresso every morning. She said that's the only thing that worked.

Helen and mayofeb 2020, I am trying to pick my jaw up off the floor and jump start my heart after reading your posts. Thanks so much for sharing with me!! I am blown away by your posts!!!!! May I ask some questions? Please only answer if you are comfortable and if not, no worries. Or, if you prefer, you could answer in a private message. I don't want to make anyone uncomfortable and I don't want to cross andy boundaries.

How young are you beautiful girls?? Have you broken any bones spontaneously aka, not injury/trauma? If so, which bones? Do you take steroids and if so, how many mg. per day and for how long? mayofeb202, which Bisphosphonate did you take?

I think it prudent for me to join the Rheumatology blog. It's going to be hard to keep up here but I want to try. I have so many appointments it's beyond belief but I will try.

Thank you so very much. My husband and I just discussed what you said (no names). We are both taken back. Ug. Take care of yourselves my friends. I would put some cute emoticons but this table won't allow me to do it anymore so hugs to you both!!!! Sunny

Helen, See my reply to mayofeb202

@bustrbrwn22 @catharbert I tried Lyrica 5 years ago, and was starting to have relief from my pain, but I had a bad reaction to it and had to be in the hospital for a few days. Bummner that I couldn't take it. I was incoherent, no memory, couldn't form a complete sentence, dizzy, heart went into a bad rhythm in the ER.

Weight gain is no trivial issue, whether it's from poor diet or from a medication. Back in 2004, I was trying to find an antidepressant, testing one after another for 6 weeks, and I think it was Lexapro that made me hungry all the time and I gained 15+ pounds. Another one made me very suicidal, on the exact shedule in the list of warnings. Not good, as I was suicidal to begin with.

It's been around 5 or 6 years since my last OD. I know people don't like to hear what my first thought was when I woke up, but it was, "I'm such a failure. I can't even get suicide right!" That's a thought that's hard to keep filed away in a locked drawer. It resurfaces periodically. I don't feel at risk, but suicidal thoughts tend to ride piggyback on depression and anxiety. I hope that you're at a safe place now.

Jim

Hi @mayofeb2020 migraines are awful! They can ruin someone’s whole day. I am glad she found a remedy that worked for her. I know a lot of the migraine medications contain high doses of caffeine. In my case I drank coffee but saw no relief. Thank you for thinking of me and forwarding your suggestion. Toni

@sunnyflower. I was prescribed Fosamax. I actually fell last year trying stupidly to carry something heavy to my house. Landed kind of on top of the item with my right hip. Got an Xray, nothing broken, thank goodness. My daughter's mother in law had breast cancer and according to her, she lost 25 percent of bone density due to various treatments . She was on Fosamax too. She takes some supplements for joint pain. Fosamax is supposed to be taken for 3 to 5 years only, after which time, patient has to switch to something else which indicates that it's not a good drug to take long term. That alone worries me. I'm sure alot of people take this but I'm very sensitive to drugs. I'm not on any steroid. I have a small frame.. 5'2 and 105 lbs soaking wet so i don't really have much "cushion" when i fall so i have to be careful!

Sunny, I don’t take steroids now, I have had about 7 injections and taken pills 3 times in the past 10 yrs. for various reasons. I am going to have an injection soon for my hip bursitis. I am 73 yrs. old, 5’ 4” 115 lbs.

@helennicola @jesfactsmon Do the injections work and do you need multiples in a compressed timeframe? Is a cortisone injection the same as a steroid injection. Sorry for my lack of knowledge and thanks for your patience explaining