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DiscussionTriple-Negative Polycythemia Vera with MF-1 – Looking for Similar Case
Blood Cancers & Disorders | Last Active: Jun 3 8:54am | Replies (7)Comment receiving replies
Replies to "I haven’t been diagnose with anything yet. My first appointment is next week hopefully I will..."
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@kasey78 My diagnosis took almost six months because several physicians were unsure how to proceed and seemed completely lost. One doctor even suggested that I was looking for a disease, despite my blood counts being significantly elevated.
Eventually, I found a hematologist who was experienced with myeloproliferative neoplasms. I traveled about one hour by plane to see her, and she was able to establish the diagnosis.
Regarding my spleen, it is currently normal in size, but I should mention that I am being treated with ruxolitinib (Jakavi), which can reduce spleen enlargement.
Please keep us updated on your progress. I sincerely hope you are able to find knowledgeable specialists who can help you reach a diagnosis and receive the appropriate treatment.
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