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Dreading Sundown…

Caregivers: Dementia | Last Active: 4 hours ago | Replies (17)

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@labrown

It's amazing that you're just beginning to get worn out. You are a trooper.

I have been worn out and worn down for over a year, but I just pick myself back up and start a new day--hoping that it will be better but prepared that it might be worse than the day before. Caregiving might do me in, but at least I will die happy, knowing that I did my best. And as we keep reminding each other (and quoting Karla), with God's help: "We can do it!"

P.S. George's sundowning behavior has gone through different phrases during this past year. At first, I gave him a melatonin around 8 p.m. He would go to bed around 9 p.m. and sleep for two hours, wake up every hour on the hour after that, and then stay up for a three-hour interval every night. While he was awake, he got in and out of bed up to 16 times during that interval.

Now, on most nights, he refuses to come to bed because he's either afraid that his back will hurt too much, or that he won't be able to get back out of bed; so he insists on sleeping in his recliner, which is in another room. I still give him a melatonin at 4 p.m. and another one around 8 p.m. He falls asleep in his chair at 9 p.m., sometimes earlier. Around 3 a.m., he gets up and starts wandering around and hollering. I give him a drop of THC/CBD, which gets him to sleep for two hours. When he wakes up again, I give him a gummy and he'll sleep until 8 a.m.

One manifestation of George's anxiety is that he asks me all day long and at night right before bedtime: "Where's my wallet? Where are my keys? Where's my cell phone?" I got him a pouch for him to keep all those things together in one place, and I tell him to keep the pouch on top of his desk in his office. So, when he asks for one of those items, I tell him that it's in his pouch. I thought that would simplify our life; but now, he'll ask me where's his pouch, and I tell him that it's on top of his desk. Then he'll ask where's his desk, and I tell him that it's in his office. Then he'll say: "I don't know where that is." Did God choreagraph variations of a new dance for dementia partners? Is there humor in this somewhere? I must be missing it because the repetition drives me crazy--then I have to snap out of it.

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Replies to "@labrown It's amazing that you're just beginning to get worn out. You are a trooper. I..."

@georgescraftjr
Hi, just a pouch idea:
What if his pouch was a belly pack, and he just wears it around during the day with his items inside? That way, he always has it with him.

@georgescraftjr

CAVEAT: You have to be careful about mixing CBD with prescription medications. The reaction varies from individual to individual. Before I started giving George CBD, I researched drug interactions, and read that mixing drugs or mixing drugs with CBD, especially in the case elderly patients, can lead to breathing issues, coma, and death.

I also made a list of all of George's prescription medications and consulted with a geriatric psychiatrist AND an MD who was an international cannabis expert. They were worth the out-of-pocket expenses and very reassuring.