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I Can't Be the Only Person With This Issue
Bones, Joints & Muscles | Last Active: 4 days ago | Replies (60)Comment receiving replies
@mmata Thank you for writing. No, I had not heard of Arachnoiditis before your message. I will look into this this week, as I have received multiple suggestions to try here on the Mayo board, and I will be looking at them all.
Replies to "@mmata Thank you for writing. No, I had not heard of Arachnoiditis before your message. I..."
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@marcd2k
I don't want you to be discouraged when you research Arachnoiditis and Adhesive Arachnoiditis, but both of these are extremely rare in not only the US, but also throughout the World too. Since it is si rare, there have not been many or frequent clinical trials, plus there have not been any medications that have been known to be of help with the pain. Since Arachnoiditis and Adhesive Arachnoiditis is caused by actual clumps of nerves that form in various areas by the spine, it can be a progressive condition that starts in one level of the spine, such as the Lumbar area - and then can progress to the Thoracic spine and possibly may progress even even further to the cervical spine with each level developing these "nerve clumps". With this condition injections to try to help the pain are not advised, as an injection "may" compromise one of the nerve clumps and could cause more damage. In addition, at this time, surgery is not advised either for the same reason. I just didn't want you to be surprised as you do your research. You are in my prayers. I hope that you can find help for your personal situation.
mmata