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5 Years Since Completion of Proton Radiation

Prostate Cancer | Last Active: 22 hours ago | Replies (14)

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@rlpostrp

Doctors do not emphasize the loss of libido and erections which occurs in the vast majority of treated men because it might deter them from getting the recommended treatments. For me Lupron caused the most damage and at 10 months since the end of treatment I still have no erections or libido. Do not give up because some men do recover somewhat more than a year later.

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Replies to "@rlpostrp Doctors do not emphasize the loss of libido and erections which occurs in the vast..."

@pesquallie True. Doctors are focused on treating the disease - which is appropriate, I think.

I shared with my urologist, radiation oncologist, and medical oncologist that both successful treatment and quality of life were equal priorities for me. That set the foundation for finding a treatment solution that would work for me.

With that knowledge, my medical oncologist emphasized that I would have to make a solid commitment: (1) to engage in robust resistance-training exercise, and (2) despite the libido being gone, to continue “doing it” despite the desire not being there, if I was going to maintain my quality of life while on Eligard. (Much of what goes on “down there” is about hydraulics so, keeping the blood flowing was important.) For me, that worked. Though the libido went to zero, everything still worked.