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Any Briviact experiences to share?
Epilepsy & Seizures | Last Active: 4 hours ago | Replies (143)Comment receiving replies
I was diagnosed in 1975, epilepsy didn’t seem to exist. We didn’t have computer groups. I really had to learn on my own. It’s really a bad choice. I was a wild teenager drinking smoking, drugs. Tegretal was like a sledgehammer, so I wouldn’t take my meds. I ate a lot of floor before I found my way out. I mean years of seizures. I would love to give advice for people in the same game of stupidity. I mean I am lucky to be alive.
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Hi @nitsuait
What you went through was incredibly hard — being diagnosed in 1975, when epilepsy was so poorly understood, with little community support and none of the wide variety of medications and treatments we have today. You had to learn most of it on your own. It's no wonder you struggled a lot. And yet here you are — having found your way through all of it. That alone speaks volumes about your strength and resilience.
The fact that you can now look back and say "I would love to give advice to people in the same situation" tells me so much about who you are today. That hard-won wisdom — the kind that only comes from having truly lived through something — is exactly what this community needs and values.
I'd love to hear more about how you found your way out. What helped you turn things around? Your story could mean the world to someone who is struggling right now and feels just as alone as you once did.
And how are you doing today — have you been able to speak to your doctor about the Briviact?
Chris
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