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Chronic severe nocturnal hypnic headaches

Headache & Migraine | Last Active: 4 days ago | Replies (299)

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I’m somewhat new to hypnic headaches but not migraines or occipital head pain. I’ve had headaches for over 40 years. I’m 76 and still got ‘em.
I diagnosed myself with hypnic from others’ experiences here and a lot online after I started waking every morning about 3 with a headache about a year ago. The headache specialist I now see who confirmed the diagnosis and a need for Indocin also told me I could be having more than one type of headache. This is helpful to know.
I found Indocin to be helpful for the hypnic. I’m a bit worried about long term use. I am doing Botox again. It helps prevent the occipital pain, but I can’t sleep unless I’m almost sitting up. I use Imitrex when a headache occurs in the day. Gel pacs are helpful on my head or around my neck. Just learned that around the carotid artery in your neck helps constrict blood to the head causing throbbing.
We longtime headache patients may very well have different types of headaches. I very much believe that I do. Don’t let a doc tell you what you feel. You know. We can all help each other.

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Replies to "I’m somewhat new to hypnic headaches but not migraines or occipital head pain. I’ve had headaches..."

It has been awhile since I have commented but wanted to reach out again. I would highly suggest a reputable Food Reactor/Sensitivity Test. The one I took tested against 150 foods and chemicals. I discovered several healthy foods. Many of my trigger foods fructose and possibly lactose. Some of the worst are corn syrup ( no surprise, it's not food) watermelon, oranges, tomatoes, sweet potatoes, carrots, celery, brussel sprouts, cauliflower, asparagus, beef, turkey, msg, some food dyes.
1 100mg Caffeine tablet taken right before going to bed almost always helps if I add minimal amounts of my trigger foods to my diet.
I try to focus on the healthy foods that I CAN eat. Avoid processed foods (there's almost always a trigger listed). Eating out is difficult. I do 'grieve'/miss some foods but Thankful for my 'good food' list.
My food test was almost $1000 15 years ago but worth it! There are newer methods of testing (strands of hair) that may work.
I hope this info helps someone. Prayers for all in this struggle.