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knucklehead4352 avatar

Does anybody have experience with SANEXAS for neuropathy?

Neuropathy | Last Active: Jun 3 1:38pm | Replies (302)

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Profile picture for sashi10 @sashi10

Last year I was diagnosed with Axonal neuropathy due to Sjogren's. My neurologist did not explain the difference between Axonal and demyelinating. I am doing all that I can to keep it from progressing further up my leg. Reading about other's journey inspires me to keep trying to find a better treatment than gabapentin. Acupuncture has helped but it requires regular treatment.

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Replies to "Last year I was diagnosed with Axonal neuropathy due to Sjogren's. My neurologist did not explain..."

Hello @sashi10, Welcome to Connect. Learning more about your condition and what treatments are available is one of the best things you can do to help yourself. You are not alone worrying about your neuropathy progressing. Many, if not all of us, worry about the neuropathy getting worse. I thought I would share a few links others, including myself, have used to learn more about neuropathy.

-- Foundation for Peripheral Neuropathy: https://www.foundationforpn.org/
-- Neuropathy Commons: https://neuropathycommons.org/
-- Neuropathy Resource: https://neuropathyresource.com/

There are many different discussions here on Connect that you might find helpful. Here is a search of Connect using "neuropathy what helps" if you want to scan through them - https://connect.mayoclinic.org/search/discussions/. Have you tried the search function to find others with similar questions?

@sashi10
In a large study published in the Anesthesia and Pain Journal, Gabapentin appears to be one of the contributing factors associated with dementia. Can a neurologist or professional in the field of neuropathy speak to this finding since gabapentin is frequently prescribed in the treatment of peripheral neuropathy? Specifically, does the benefit outweigh the risk? I realize that in the 75-plus years since peripheral neuropathy has been known, little to no cure has been found, and that few, if any, long-term management treatments have proven successful in mitigating the problem for the millions who suffer from this disease. Help!