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lindamarie63 avatar

Anyone living with Essential Thrombocythemia with JAK2?

Blood Cancers & Disorders | Last Active: 1 hour ago | Replies (591)
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Profile picture for mdramsey48 @mdramsey48

@dmcj Oh damn I am so so sorry! You and your daughter have to keep fighting for relief. Have you tried the MPN forum on Reddit? Theres a couple of people on there that have done extensive research on this subject. Saying prayers!

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Replies to "@dmcj Oh damn I am so so sorry! You and your daughter have to keep fighting..."
dmcj | @dmcj | May 31 2:33pm

@mdramsey48 thank you no, I have not done that. I didn’t even think that was a place for people spoke about MPS. I will definitely look into it. I really appreciate it.

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