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@deccakid
I have known that I have a germline genetic mutation most likely passed on from my dad who died of prostate cancer some 40+ years ago. Mine is of the rarer ilk, a mismatch repair gene that gives me Lynch syndrome. I also have a somatic BRCA2 mutation ()not germline). So, this knowledge has been most helpful because it has led me to avail of a number of treatment protocols over the past `12 years that are specific to my mutation. The downside of course is that there is no cure or lasting remission. As I embark on year 12, my PSA is once again on the move and I am probably going to have to manage and treat my 7th recurrence of this relentless disease.
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@yougnu
Peter, who runs the reluctant brotherhood advanced prostate cancer twice monthly meetings. Has Lynch syndrome, and somatic BRCA2. He’s had prostate cancer for 12 years and has had almost every treatment available. Had Pluvicto almost a year ago and it immediately dropped his PSA to .04 after two sessions. It has slowly been creeping back up, So at some point, he will need another treatment.
You might want to attend one of the meetings, you have such similar diagnosis. You could commiserate and discuss different Treatment options.
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@yougnu Jeez, Lynch Syndrome really sucks. It’s like every organ in your body is susceptible to some form of cancer.
A guy I knew had something like 5 abdominal surgeries over a 3 year period. His surgeon said that next time he would install a zipper, instead of sutures!!
Gotta laugh, I guess…
Phil