← Return to AML, age 78, taking Decetabine/ Venetoclax, no transplant

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AML, age 78, taking Decetabine/ Venetoclax, no transplant

Blood Cancers & Disorders | Last Active: Jun 1 9:47am | Replies (80)
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@loribmt Thanks for the link!
Currently I am scheduled for INQOVI every 6 weeks. Your post mentions it in conjunction with Venetoclax. If I understood my Hem/Onc correctly he is transitioning me to INQOVI to treat the SF3B1 mutation found in my December BMB (responsible for MDS). No need for V and D since my FLT3 and NPM1 are not detectable. I have a video call scheduled with the pharmacist next week to discuss what to expect from the side effects of INQOVI. I will post my journey as
I transition to INQOVI.
Prayers for all!

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Replies to "@loribmt Thanks for the link! Currently I am scheduled for INQOVI every 6 weeks. Your post..."
Lori, Volunteer Mentor | @loribmt | May 31 9:38am

Hi @sonieaml The article I sent you was mostly just informative. The combo treatment is for new AML patients who can’t tolerate intensive chemo. It is in regards to the combination of drugs along with the INQOVI.
I mostly sent it to you so you could see the efficacy of the drug. INQOVI has really made a huge difference for some AML patients.

Your current story is nothing short of miraculous. To have those two mutations which are now undetectable is amazing. Years ago, if intensive chemo wasn’t an option, there wasn’t much hope for AML patients with FLT3 and NPM1. I had those two mutations, plus another. I was able to have the intensive chemo but even then I was in the high category for relapse. The chemo would only be good for another round or so and then I was out of options without the transplant. So, just in 7 year’s time there have been so many major changes for us older patients.
With your two mutations in complete remission there would be no reason to continue with the V & D. That is really outstanding! I wish you well with this transition to the INQOVI for the SF3B1 mutation.
As always, you know I want to follow along with you. We become family here… hugs!

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