@dmcj
So sorry to hear about your daughter. You may have addressed this in a previous post but have they tried hydrea? Also, I am wondering, Why does she have to be on a platelet lowering medication? Many times if the platelets are under 1,500,000 and the patient has not had a blood clot and the patient is under 60 yo they just treat with aspirin. I am not a physician but I have had ET since 2002 so I have seen the many different protocols and medications used over a long period of time. I am in no way telling her not to take platelet lowering meds, I am just wondering. I got several consults from specialists in MPDs over the years - they never stated me on platelet lowering meds until I was 60yo and platelets over 1,500,000. But maybe the protocol has changed.