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Living with Neuropathy - Welcome to the group
Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)Comment receiving replies
Thanks for welcoming me to the group. Im curious to see if any has a clue about my problem. My right foot and basically the right 3 toes and and foot base directly behind them feel like they are huge and I have a big lump of newspaper wadded up behind my toes.. When I put a shoe or sock on it gets even worse. I walk everyday but it doesnt change anything, just simply feels as if it is getting bigger.When I lay down the ache seems to move up my leg and into my hip. I wake up approximately every 15-20 minutes with severe cramp/ charlie horses all night long. The only relief is to get up and put weight on the leg. I have been to several doctors,the whole gammit at orthopedic doctors and had a nerve conduction test, steroid shots into my back and hip of which none helped at all. The doctors leave me feeling as if its all in my head. Yes I have had a back fusion surgery 3 years ago however this was happening prior to that.I dont feel as if this is just really in my head as it waked me up in the middle of the night all night long. Have others had this same issue? Have you ever found a doctor to help? If so What type doctor do you recommend. Im so sick of this and Hope you guys might can enlighten me. Thanks for any help in advance
Replies to "Thanks for welcoming me to the group. Im curious to see if any has a clue..."
Hi @mertgraves and welcome from me as well. I often read posts with interest but absolutely zero knowledge of reasons for a person's condition as well as no experience with same. With that said, my mother has had severe leg cramps for years which she treats by drinking quinine water before bedtime. This is a well known treatment for charlie horse I know but just thought I'd throw it out there just in case you might not have tried it. It also probably won't help your other symptoms. But I hope you are able to find help and relief from your issue in any case. Best, Hank
Hi Mert. I have small fiber neuropathy dx by two biopsies in both feet and hands. I also have complex regional pain syndrome in both feet and left leg. I just asked my primary care about muscle cramps and he told me to get magnesium citrate which I haven't done yet! I can also relate to laying down and the pain in my calf and thigh and butt. Have had injections in sciatic nerve that have helped for a while.. I find neurologists useless and was told the same as you IAIYH. I have been seeing a pain management doctor for eight years now who is absolutely brilliant. I have had a spinal cord stimulator for eight years and find it helpful, more so for some areas than for others. My foot pain is the worst. A botched foot surgery by an orthopedic surgeon caused my complex regional pain syndrome (CRPS). My pain management doc is very knowledgeable about CRPS. Perhaps someone near you knows more about CRPS than most. It might be a place to look. If there is more you'd like me to share, I'd be happy to. Blessings, Barb
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Hello @mertgraves, Welcome to Mayo Clinic Connect. There is another discussion you might find helpful -- Severe leg cramps: https://connect.mayoclinic.org/discussion/severe-muscle-cramps/
I also found a couple of articles that may provide some help:
-- 6 causes of nocturnal foot cramps: https://www.medicalnewstoday.com/articles/foot-cramps-at-night
-- Aching Feet At Night? 5 Shocking Causes Of Your Discomfort: https://www.medicaldaily.com/5-causes-aching-feet-night-431985
You mentioned being to several doctors and not be able to get any treatment or diagnosis that helps. Have you thought about seeking help at a large teaching hospital or the Mayo Clinic? If you would like to seek help from Mayo Clinic, contact one of the appointment offices. The contact information for Minnesota, Arizona and Florida can be found here http://mayocl.in/1mtmR63.