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@mm180 I am just reading all the responses to "The Loneliness" thread...Thank you @gratia for beginning the conversation. The responses are so helpful and so vulnerable. I feel much the same at times. I recently read about ambiguous loss when dealing with a loved one with cognitive issues and in Alzheimer's disease. Ambiguous loss is a type of grief without closure or clear solution. Basically it leaves the griever (me and you) caught somewhere between hope and mourning. This term describes what I feel. This can trigger feeling of anxiety, grief, and guilt. I had a good cry for myself after discovering this term, yet felt better knowing my feelings are somewhat normal when dealing with this disease. I have been a caregiver for a few years now; my husband is on a maintenance program for Lecanemab with infusions once per month. He cannot be left alone for more than a couple of hours now. He barely uses his phone, has lost his executive function to complete tasks. So, like you, I take care of everything in the household, make all decisions for our lives with limited input from my spouse. Of course, I miss my previous life and feel lonely quite a bit. So I schedule things to do together. Small dinners with close friends, a concert in a small local venue, and walks by the ocean. I need my alone time and have begun asking family to stay one night so I can get away. My first time away was two weeks ago. I came home a new person with my sense of humor intact again. I wonder what will happen as he progresses? I am accepting his diagnosis and shifting my focus to not "fixing" him but adapting to my new reality-easier said that done. @IndianaScott What a great idea to write letters to yourself and others. It reminds me of a book I read recently "The Correspondent". Thanks everyone for sharing your fears, hopes and dreams. Karla @kjc48 Get the hairpiece! Thanks everyone and hugs from Cape Cod.

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Replies to "@mm180 I am just reading all the responses to "The Loneliness" thread...Thank you @gratia for beginning..."

@moea Cape Cod. My husband and I moved from Chatham. I used to run one of the real estate offices there! We're in florida now. Yes, get the hairpiece. I got the wig, but I'm having a tough time. Again, pales in comparison to what we're dealing with daily with delayed thinking, memory loss, sequencing issues, and the load on every caregiver. I feel your pain, and sadness over a life gone by. And I'm glad you can get out, go eat some clam chowder, however lobster rolls for $60.00. OMG. just saw that on TV. Thanks for the support, to my fellow Cape Codder. My husband caught a 900 pound tuna on cape cod waters, prior to his MCI. Best, Karla

@moea -how wise you sound…and how blessed to have family to come and stay a night so you can recharge! That is a great idea, as is writing letters to oneself, or journaling. This is the week my husband will have his PET scan to see if he will be receiving Leucanemab or possibly Kinsula. I so appreciate you and everyone here! This is a lonely journey-for us and for our loved ones in a different way. Stay well!