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The Loneliness

Caregivers: Dementia | Last Active: 54 minutes ago | Replies (22)

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@mm180 I am just reading all the responses to "The Loneliness" thread...Thank you @gratia for beginning the conversation. The responses are so helpful and so vulnerable. I feel much the same at times. I recently read about ambiguous loss when dealing with a loved one with cognitive issues and in Alzheimer's disease. Ambiguous loss is a type of grief without closure or clear solution. Basically it leaves the griever (me and you) caught somewhere between hope and mourning. This term describes what I feel. This can trigger feeling of anxiety, grief, and guilt. I had a good cry for myself after discovering this term, yet felt better knowing my feelings are somewhat normal when dealing with this disease. I have been a caregiver for a few years now; my husband is on a maintenance program for Lecanemab with infusions once per month. He cannot be left alone for more than a couple of hours now. He barely uses his phone, has lost his executive function to complete tasks. So, like you, I take care of everything in the household, make all decisions for our lives with limited input from my spouse. Of course, I miss my previous life and feel lonely quite a bit. So I schedule things to do together. Small dinners with close friends, a concert in a small local venue, and walks by the ocean. I need my alone time and have begun asking family to stay one night so I can get away. My first time away was two weeks ago. I came home a new person with my sense of humor intact again. I wonder what will happen as he progresses? I am accepting his diagnosis and shifting my focus to not "fixing" him but adapting to my new reality-easier said that done. @IndianaScott What a great idea to write letters to yourself and others. It reminds me of a book I read recently "The Correspondent". Thanks everyone for sharing your fears, hopes and dreams. Karla @kjc48 Get the hairpiece! Thanks everyone and hugs from Cape Cod.

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Replies to "@mm180 I am just reading all the responses to "The Loneliness" thread...Thank you @gratia for beginning..."

@moea Cape Cod. My husband and I moved from Chatham. I used to run one of the real estate offices there! We're in florida now. Yes, get the hairpiece. I got the wig, but I'm having a tough time. Again, pales in comparison to what we're dealing with daily with delayed thinking, memory loss, sequencing issues, and the load on every caregiver. I feel your pain, and sadness over a life gone by. And I'm glad you can get out, go eat some clam chowder, however lobster rolls for $60.00. OMG. just saw that on TV. Thanks for the support, to my fellow Cape Codder. My husband caught a 900 pound tuna on cape cod waters, prior to his MCI. Best, Karla