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Replies to "My mother after 10 yrs of kidney transplant now diagnosed with multiple myeloma at very initial..."
@sanyukta it’s always frightening to hear news of a loved one’s illness. There are so many variables that it’s difficult for anyone to say with certainty just what the path of this illness will be. The good news is that there has been a lot of progress in the treatment of multiple myeloma.
“Watch and wait” is hard for a lot of us who are used to finding a treatment and working to cure what ails us. It’s important to remember that diet, exercise and working at what we can control to meet overall health goals is within our reach.
It’s also important to have a good relationship with her hematologist/oncologist. I’m sure you have many questions and it’s important to make a list of those concerns and speak about them during your mother‘s appointments. Having a good online community is also helpful and I hope that you can establish some of those relationships here on Connect. Keep in mind that everyone’s health profile is different, even if we suffer from the same disease. We can still learn a lot from one another.
Have you had a chance to talk to your mother’s physician since your initial post?
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@sanyukta If your mother was diagnosed with smouldering MM, the prognosis is generally wait and see with ~6 month blood testing. Not all SMM progresses to MM. If it is MM, then a PET scan can help with the prognosis and to see if and when to start treatment. Basically, it would be good to get a full discussion with the hematologist regarding the type of SMM or MM (some are low risk, some high), treatment or wait, and testing. There are online support groups with info as well, such as "Rochester MMSS" and pubs on the Internatl MM Foundation (https://www.myeloma.org/).