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Kidney Transplant - Side Effects of Immunosuppressants

Transplants | Last Active: May 29 3:24pm | Replies (24)

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@dotygl
I am so sorry to hear this. I will share I did not feel good on Tac either. i switched from Tac to modified Cyclosporine 4 years ago and do better on that drug. It is a delicate balance - quality of life vs health of transplant. I pray you are able to communicate clearly and your physician can listen and also communicate clearly, so you may find the best answer for your husband❤️

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Replies to "@dotygl I am so sorry to hear this. I will share I did not feel good..."

@stephanierp Thanks for your caring spirit and that the change to another drug has you feeling better. Happy for you. I feel like we have talked ourselves to death to deaf ears about new changes. With a rejection of organ in first 2.5 mos and taking 14 mos for kidney to work well and blood chemistry in labs to be good----changing anything now is not on the playing table. We went down that intense journey for 14 mos . Since the kidney works the doctors are severely hestitant to change anything. We live on east coast . After a while you get tired of being poked and prodded on too. I am so very out of ideas to improve his or my lives. Never in a million years saw this coming. His chemo long ago for cancer was a picnic compared to all this.