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deccakid avatar

Anyone do genetic testing?

Prostate Cancer | Last Active: Jun 4 1:23pm | Replies (19)

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Profile picture for Jeff Marchi @jeffmarc

@deccakid
Good to hear you’re getting tested. Some medical centers require everyone to get tested. They not only have drugs for BRCA2, but they also have drugs for PTEN (in trial but available).

The first thing I did when I found I was BRCA2 was to have all my cousins my brother and sister, and my two children get tested. One cousin who’s Mother had breast cancer Was cleared so her daughters don’t need to be tested. Another daughter of my cousin was cleared as well, her grandmother and her aunt died of breast cancer. Both my brother and sister were cleared and as a result their children Didn’t need testing.

Turns out I was the only one left in the family with BRCA2. My mother was the only one of the three sisters that didn’t have any problems with BRCA2, Just passed it on to me.

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Replies to "@deccakid Good to hear you’re getting tested. Some medical centers require everyone to get tested. They..."

@jeffmarc
Howdy Jeff,
Thanks for the reply...I bet there's some sighs of relief there!

Yeah, I had to push this. Apparently here they don't even regularly do genetic testing. With the almost explosion of Genetic science I think it's a valuable tool....My local cancer center barely heard of genetic testing...I'm sure they think I'm crazy! (Yep, when it comes to cancer!!)
LOL
I'm still waiting to hear back as far as approval and scheduling, and I found out there is a genetic counselor in our capitol city...a much larger facility...

I'll keep y'all posted