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DiscussionAnyone living with Essential Thrombocythemia with JAK2?
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Replies to "Are you all saying that we can take aspirin instead of the HU which I assume..."
@sanlee7 If you are really happy with your current hematologist don't hesitate to ask where s/he is going. If they can't tell you (my heme/oncologist had a non-compete agreement so when he left the practice where I was being treated, he couldn't tell me where he was going) rely on Google to track him/her down. That's what I did and was able to follow my doctor - who is amazing - to his new practice.
@sanlee7
Not instead of---- but sometimes aspirin is prescribed with HU. I cannot take aspirin in any form so do not. Just get yourself a new doc asap.
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@sanlee7
Just getting started, and now you have to change horses midstream! I'm so sorry you must look for a new doctor.
Maybe you can find where your current hematologist is going, and call that practice?
In the meantime: Please continue doing exactly what your doctor prescribed!
Aspirin is not a substitute for HU. Instead, it's Robin to HU's Batman.
HU reduces the number of blood cells that our bone marrow produces. This is essential because over-production taxes our energy, crowds our blood vessels, and wears out our bone barrow.
HU doesn't instantly lower your count, though! It can take weeks, months or even years to get the desired reduction.
That's why daily aspirin is helpful, for those who can tolerate it. Aspirin literally makes our blood more slippery. Every dose helps discourage our platelet-heavy blood from clotting.
With every dose of aspirin and HU, you are taking control of your ET.
Of course you're scared! But you are doing everything right.
Keep up the good work!
Please let us know how you're doing.