@babesmom hello, and I’m so sorry you are dealing with this. I have had similar issues with my lungs. My symptoms go on and off but when they flare up x it’s bad. I can’t move with out gasping for air, I can’t walk for 5 feet without gasping for air, tight chest, shortness of breath-
My first Respiratory Doctor (I’m in Europe) said, I’m fine, gave me a load of inhalers and told me take a holiday to a warmer places. Omg !! I moved to a different specialist and found a great doctor that has been digging into my symptoms.
I would definitely recommend moving doctors until you find one that listens and cares not just tickets a box and takes your payment.
Anyone, - all my test have come back clear except for my LFT - my DLCO’s are lower then average and when I’m in a flare up, they go down significantly low. So permanent scaring which is what we want to avoid. My body responds to are steroids-
So far I have tested clear form Auto immune but regardless I’m being out on CellCept as a steroid sparing drug, and it should settle down the inflammation and clear it all up. It’s a slow moving medication . I will most likely be on this medication for 3-4 years, not ideal but im looking forward to having healthy lungs again.
We are not sure why I have this has happened or what caused it, but it did come on just after I had Covid.
Prior to that I had exercised induced asthma and seasonal asthma but Covid took my lungs into this direction.
Although I am stable now, I am on 7.5 mg of steroids I am starting this medication in a week to avoid further flare up and prevent what could be permanent lung damage if I get another flare up.
Maybe you can look into this medication as well. It will keep you here for your family and that’s most important.

Is anyone on this medication that can give me advice?
It’s CellCept and generic name Mycophenolate
Would love to hear from you.