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Post-op for cecal volvulus, need tips for gastroenteritis
Digestive Health | Last Active: May 29 7:04am | Replies (6)Comment receiving replies
@lisalucier Thanks for your comments! Yes, as I said, I was on prednisone for a year and a half, most of that spent tapering off the drug, which is the standard treatment for PMR. As far as I know, specialists in neither field know anything about the other. But since I had no previous GI issues, cecal volvulus is pretty rare, and prednisone has SO MANY serious side effects, I thought there might be a connection. I don't suppose it matters to me at this point, but I sure wish they would work on prednisone to make it less toxic. There are biologic alternatives, I have learned through this forum, but they are expensive and have their own side effects. They were not offered to me when I needed treatment.
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@54pontiac I remember being the "star patient" on the GI floor in the hospital after my cecal volvulous because it is so rare. I did have long standing constipation and likely pelvic floor dysfunction (the latter is still true) prior to the event, but the cause remains unknown. The surgeon explained that I have a "floppy colon", but that's about the only notable feature that seemed connected. I have since been diagnosed with reactive arthritis, which got changed to lupus, so perhaps there is an autoimmune component. Did I read correctly that you have a colostomy? How do you do with that? I have so many troubles with everything since the volvulous that I am considering a future with an ostomy of some sort, although I know that decision should not be taken lightly. The colorectal surgeon I see said it would be permanent.