@george544
I’m sure my wife has had same devastating level as same as yours when she learned bad news from the tests or observed my pains. She cried so many nights. I can’t take that negative moments so I have taught her to calm her down.
1. I asked her to look at deeply about my situations and understand well my sickness. Sadness can’t help me at this moment so find some ways to support me.
2. I downloaded chatGPT on her phone and asked her to get help from there…it helps her a lots from get to know my cancer to figure out what kind of the foods that are good for me. It keeps her busy and she knows what to do to support me at this time.
2. For myself, I can’t let this one knock me down and I learn that I need to fight with it to the last breath. I stop thinking the past and future, just focus at this moment. I keep myself positive. Everyone looks at me and they don’t think that I have cancer and I’m suffering pain around the stoma now. I just smile and talk enough or less.
I show my wife that I still enjoy the life such as:
Look at the sky honey, it is clear and beautiful
I love the bird’s sing.
The beach is nice but the waves are rough….
Something like that keep me on this battle over 4 years, and I will continue.

Hi @george544, checking in to see how you are doing. I was wondering if you and your husband are also getting care from palliative care specialists. Palliative care can be helpful for the whole family, including social work, symptom control and much more.

Do you have palliative care on your team?