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Moderator

Living with Neuropathy - Welcome to the group

Posted by Colleen Young, Connect Director @colleenyoung, Jul 14, 2017

Welcome to the Neuropathy group.
This is a welcoming, safe place where you can meet other people who are dealing with neuropathy. Let’s learn from each other and share stories about living well with neuropathy, coping with the challenges and offering tips.

I’m Colleen, and I’m the moderator of this group, and Community Director of Connect. Chances are you’ll to be greeted by volunteer patient Mentor John (@johnbishop) and fellow members when you post to this group. Learn more about Moderators and Mentors on Connect.

We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let’s chat. Why not start by introducing yourself? What concerns would you like to talk about?

Interested in more discussions like this? Go to the Neuropathy Support Group.

paulv | @paulv | Feb 23, 2020

John The Anodyne treatment is with a boot and Monochromatic Infrared Photo Thermal Energy Therpy [infrared light]. Much different than Zopec FYI Paul V

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waltermc | @waltermc | Feb 24, 2020

John, I did the anodyne therapy a year ago, but this used pads that could be positioned wherever they wanted. They used 4 pads on each leg, one top of each foot, one on the pad of each foot, and one on each side of both legs. They left them on for 30 minutes each session. I did 16 sessions, which was a 3 hr. round trip from my home. After all was said and done, I could feel relief, but in a year since, that relief has dissipated. Would it be worse had I not done it? I don't know. But I know everyone is different, and I have never tried the boot system. I'm just glad that Medicare paid for it.

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1 reply
Mentor
John, Volunteer Mentor | @johnbishop | Feb 24, 2020
In reply to @waltermc "John, I did the anodyne therapy a year ago, but this used pads that could be..." + (show)
@waltermc

John, I did the anodyne therapy a year ago, but this used pads that could be positioned wherever they wanted. They used 4 pads on each leg, one top of each foot, one on the pad of each foot, and one on each side of both legs. They left them on for 30 minutes each session. I did 16 sessions, which was a 3 hr. round trip from my home. After all was said and done, I could feel relief, but in a year since, that relief has dissipated. Would it be worse had I not done it? I don't know. But I know everyone is different, and I have never tried the boot system. I'm just glad that Medicare paid for it.

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Thanks for sharing @waltermc - I didn’t think Medicare would pay for it. Where did you have the Anodyne treatment?

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Mentor
John, Volunteer Mentor | @johnbishop | Feb 24, 2020

I'm guessing a lot of us already know this but it is good information if you want to share it with friends and relatives who may not understand.

Mayo Clinic Minute: What may be causing your hands and feet to tingle - https://newsnetwork.mayoclinic.org/discussion/mayo-clinic-minute-what-may-be-causing-your-hands-and-feet-to-tingle/

Hoping that all my friends with PN have a pain free day.

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straightway22 | @straightway22 | Feb 24, 2020

I have autonomic peripheral neuropathy, my feet and legs are numb. Having trouble with balance. Has anyone found any relief.

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wilcy | @wilcy | Feb 24, 2020

Going Wednesday to pain management to have stimulator placed inside back, bad neuropathy, can’t go anywhere

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1 reply
Mentor
Rachel, Volunteer Mentor | @rwinney | Feb 24, 2020
In reply to @wilcy "Going Wednesday to pain management to have stimulator placed inside back, bad neuropathy, can’t go anywhere" + (show)
@wilcy

Going Wednesday to pain management to have stimulator placed inside back, bad neuropathy, can’t go anywhere

Jump to this post

@wilcy Im happy to hear you have a hopeful plan. Will this be your first stimulator? Where is your pain located that the stimulator will be helping?
Rachel

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wilcy | @wilcy | Feb 24, 2020

I am 68. Have lumbar spinal stenosis! Can’t walk over 100 feet with out sitting! When I stand it’s putting pressure on nerve in spinal column! Bad neuropathy coming up legs! Have had surgery, shots, pills, decompression, My surgeon said go to neurologist, went to 2 and nothing! My pain management doctor thinks the stimulation wires put into my back next to spine will help! Been around for 50 years! Insurance doesn’t like it.Very pricey! Anyway, to take 30 minutes to install wires! Will post results!

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1 reply
Mentor
John, Volunteer Mentor | @johnbishop | Feb 24, 2020
In reply to @wilcy "I am 68. Have lumbar spinal stenosis! Can’t walk over 100 feet with out sitting! When..." + (show)
@wilcy

I am 68. Have lumbar spinal stenosis! Can’t walk over 100 feet with out sitting! When I stand it’s putting pressure on nerve in spinal column! Bad neuropathy coming up legs! Have had surgery, shots, pills, decompression, My surgeon said go to neurologist, went to 2 and nothing! My pain management doctor thinks the stimulation wires put into my back next to spine will help! Been around for 50 years! Insurance doesn’t like it.Very pricey! Anyway, to take 30 minutes to install wires! Will post results!

Jump to this post

@wilcy hope it relieves your pain and you can update us when the device is installed.

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wilcy | @wilcy | Feb 24, 2020

Tks, this is last chance! Will post probably Thursday

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