I was diagnosed in November with a 5.5CM NET at the head of my pancreas and a 1.2CM NET on the ampula. They were found incident to a CT scan I had for a sciatica issue so I was having no symptoms although the larger one may have been contributing slightly to my back issue. NET is the best pancreatic cancer you can get with a much higher survival rate than typical carcinoma. I had a biopsy which was used to diagnose the grade to determine their rate of growth. The smaller one was 1%, the larger was 5% and I was given a WHO Grade 2 which basically meant it was slow growing. (I did develop pancreatitis after the biopsy and was hospitalized for 3 days. I think something got nicked and leaked but I have never gotten a full explanation) Although I had no symptoms, I was assured I would in a few years and decided to have the surgery now while I was younger (66) and not experiencing any negative symptoms. I had the Whipple Procedure in February to remove it. The procedure is major but after 3.5 months I have recovered almost completely and have no regrets. With the small size of your tumor maybe your procedure would be different. Because NET's are rare, everyone I asked emphasized seeing someone who specializes in NET's. I live in Nashville, TN and was fortunate Vanderbilt has 3 doctors that do NET's fairly routinely. Hope this helps.
@dtkach37 Hello DT and thank you for posting. I am 65 and I have roughly the same issues however my larger of the 2 tumors I have is only 2.2cm and I'm currently being treated with monthly Lanreotide injections. Currently the oncologist are not recommending surgery because my Dototate 68 scan showed 2 additional hotspots w/ SUV's of roughly 14 and less than 7 but not necessarily tumors from what I understand which means the cancer cells have most likely spread to other areas. After my biopsy i also got pancreatitis and was hospitalized for 9 days (brutal) Did you have a Dototate 68 scan if so what were your results(any hotspots) I am seeing a NET's surgeon on Monday to see if surgery is worth the risk or not. My tumors one in the body and one in the tail are slow growing similar to yours. What was the deciding factor on the Doctors opting for surgery versus a drug treatment plan? Do they say or think you are currently cancer free? Thank you for any reply.